Länkar

EURODIS - Rare Diseases Europe
FIN - Fabry International Network
FSIG - Fabry support and information group
Genetic Alliance
GOLD - Global Organization for Lysosomal Disease
National Fabry Disease Foundation

Danmark, Fabry Patientföreningen 
Finland, MS Liitto - Finland
Norge, Pasientforening - Norway

Australien, Fabry Support Group Australia
Belgien, BOKS ( Belgien Fabry Group )
Brasilien, Association of Fabry Disease
England, MPS Society ( Community for MPS and Fabry)
Frankrike, APMF - France
Frankrike, VML - Lysosomal Storage Disorders France
Italien, AIPAF - Italy
Kanada, Canadian Fabry Association
Kanada, CORD ( Canadian Organization for Rare Disorders )
Nederländerna, Fabry Support and Informatie Groep Nederland
Tyskland, Morbus Fabry - Germany
Ungern, Fabry Disease - Hungary
Schweiz, FabrySuisse - Swiss